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Welcome
Each year thousands of people gather across the nation to make a difference. On May 15, 2010, 22 cities all over the US will participate in this event. This event allows us to introduce Angelman Syndrome to our communities. The ASF National Walk also raises the much needed funds to support our mission of advancing the awareness and treatment of Angelman Syndrome through Research, Education, Information, Support, and Advocacy for individuals with Angelman Syndrome and their families. Angelman Syndrome Foundation is a national 501© (3) organization of families, caregivers, medical professionals who care about those with Angelman Syndrome.
Angelman Syndrome is a neuro-genetic disorder that occurs 1:15,000 live births. Individuals exhibit symptoms such as developmentally delay; lack of speech; seizures; inappropriate laughter; and walking and balance disorder. To learn more, please check out www.angelman.org.
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We are a group of moms here in the Las Vegas Valley with Angelman Syndrome kids ages ranging from 3 - 13 years old. In 2007, we had our very first walk-a-thon here in Las Vegas on May 19th at Lorenzi Park. The walk-a-thon was a success. We had 144 people that participated. In 2008, we had our 2nd walk-a-thon here in Las Vegas on May 17th at Children's Memorial Park. We had 176 participants and we raised $12,152. In 2009, we had our 3rd walk-a-thon here in Las Vegas on May 16th at Children's Memorial Park. We had 50 participants and we raised $6814. The goals of this annual event are to promote awareness of Angelman Syndrome, to raise funds for research and to start a local chapter. Thank you all who participated, donated and assisted with the walks.
If you live in Las Vegas and would like to join our group, please email us.
If you would like to learn about Angelman Syndrome, please click here!
Thanks.
Angelman Syndrome Moms of Las Vegas
Please send your comments about this site to info@angelmansyndromeofnevada.com.
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