Jace Tannehill

As many of you know, our son Jace was diagnosed with Angelman Syndrome. AS is a rare genetic disorder affecting only approximately 1,500 individuals in North America. It causes severe developmental delays, speech impairment with minimal to no verbal language, seizures, and motor difficulties. You can learn more about AS at www.angelman.org The individuals with AS are the most loving ansd happy people you have ever met, Jace laughs and loves all day, he is a joy and a pleasure to be around!=)

Jace is going to be 3 in the end of April. He does not walk yet but is perfectly content with crawling. We are working every day torwards walking, he just has a mind of his own, crawling if easier and faster so lets keep our fingers crossed. We have recently introduced a spoon and bowl, the spoon is not the problem it is that the bowl is so fun to throw around, no worries though he loves food and is so independent, he will let you know He wants to feed himself! Any food he can eat with his fingers he loves Pasta, vegetables, muffins, almost anything you can put between two slices of bread, he LOVES bananas. He is messy but gets the job done! Jace and Kyler love to wrestle and they have created their own communication now, they still have their brotherly squabbles but nonetheless they have a strong love for each other and it is wonderful. Kyler has recentley learned to ride his bike without training wheels so Joe and I have began taking bike rides often. We LOVE it, especially Jace! I pull him in his buggy behind me and he sings and laughs throughout the ride. It is therapy of all of us! Although Jace never be able to live independently, we are committed to giving him the best life has to offer him. Helping the Angelman Syndrome Foundation is a great start. We hope that you will join us in this cause.

Our Family with many other families raising money for the Angelman Syndrome Foundation, which works to advance awareness and treatment of AS. This year will be our 1st year being involved with the ASF Walk-a-thon. I am proud to say that this will be the 1st annual Walk-a-thon in Las Vegas on Saturday, May 19th, 2007 at Lorenzi Park. On this date, 17 cities across the country will be walking along with us to raise money for ASF. We would like to invite all of our family and friends to join us. The ASF link above will list all the cities if you are interested. We realize most of you will not be able to attend the walk, however we would greatly appreciate your support. Donating through this site is simple, fast, secure, and tax deductible. It is also the most efficient way to make a contribution to our fundraising efforts. We also encourage you to forward this to anyone who you believe would be willing to help our cause. If you would like to donate by check, or want to discuss AS or our fundraising efforts, contact me at trixie216@netscape.net.